As a mother of a child with a rare genetic condition, there are lessons I’ve learned over the years that have helped me become a better parent and effectively advocate for my son. Dealing with the diagnosis of a special need is difficult, but there are steps that every parent 
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The first and arguably most important step to take when you discover that your child is diagnosed with Cerebral Palsy is to educate yourself.  What exactly is Cerebral Palsy? According to Mayo Clinic, Cerebral Palsy is defined as a disorder of movement, muscle tone or posture that is caused by 
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A baby is considered premature if it is less than 37 weeks old at birth.  A premature baby, or preemie, is not fully developed, meaning some vital organs may not be functioning to their full potential or not yet ready to operate at all. While a full-term newborn weighs about 
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A child is defined as “medically fragile” when, due to abuse or neglect, illness, congenital disorder or brain injury, he/she requires medications, treatments and/or specialized care or equipment. Some conditions that may qualify a child as medically fragile are: Fetal alcohol syndrome Chronic conditions such as Cystic Fibrosis, Down syndrome 
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Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome. A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant 
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